XLH Network, Inc. Forums
Welcome => Welcome => Topic started by: GinJones on January 28, 2018, 10:21:56 PM
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How will you be participating in Rare Disease Day this year? It's just one month away, on February 28. You can help spread awareness of rare diseases generally and your own rare disease in particular by downloading our toolkit at http://xlhnetwork.org/files/8915/1693/3017/rarediseasedaytoolkitfinal.pdf
Or become a Rare Disease Day Champion at https://xlhnetwork.networkforgood.com/projects/45764-rare-disease-day-champions
You can also #shareyourrare at Facebook by adding a Rare Disease Day frame to your Facebook profile here: ow.ly/5jot30hSp3C