You got here! Congratulations. This is a great place to get and share information with other XLH members. It may look overwhelming to see so much information all at once. Let us help.
If you are:
Adult with XLH, without XLH children: You may be primarily interested in reading and posting in our Adult section. You can subscribe to each of the main topics in that section, or to a single topic if there's only one on your mind at present, and then you can come back later to look at other topics as your circumstances change.
Non-XLH adult with a child with XLH: You may be primarily interested in reading and posting in our Pediatric section. Some pediatric concerns, like hearing and dental issues, may be repeated in the adult section with slightly different emphasis, so you may want to check both sections if you don't get the answers you want in the pediatric section. If your child has just been diagnosed and you've never heard of XLH before, you are not alone. Visit the Parents' Corner to see what others have experienced or to ask questions or subscribe to that topic if you prefer to absorb the experiences of other parents. As with other sections, you can subscribe to each of the main topics in that section, or to a single topic if there's only one on your mind at present, and then you can come back later to look at other topics as your circumstances change.
In need of some more private advice? Perhaps there's something you don't feel comfortable sharing with someone who doesn't have XLH or isn't the parent of an XLHer. There are some specific places for that, where only "full members" (those who have XLH or are the legal guardian of a minor XLHer) have access.
First, there's the Adult Hang-out http://vps.xlhnetwork.org/~xlhforum/forum/index.php?board=80.0 for adults to discuss particularly sensitive issues that adults may face. It’s not easy sometimes to ask others for an opinion on some, but this is a good place to ask. We expect all members to be particularly respectful of privacy here and to take special care here to treat all posts with respect, support and a non-judgmental attitude.
Second, there's the Parents' Corner.
http://vps.xlhnetwork.org/~xlhforum/forum/index.php?board=49.0 This is like the Adult Hang-out, but focused on the sensitive issues that parents or prospective parents may face. Like in the Adult Hang-out, we expect all members to be particularly respectful of privacy here and to take special care here to treat all posts with respect, support and a non-judgmental attitude.
Finally, there's the Kids' Hangout
http://vps.xlhnetwork.org/~xlhforum/forum/index.php?board=79.0 for XLH children to get to know and interact with others with their rare condition. Only members who are under the age of sixteen will have access to this section.
What if you have more general questions? The Helpful Information area is where you can ask about insurance, disability benefits, finding a specialist and the latest on medical research and clinical trials. Finally, the Community section is where you can comment on social media postings and learn more about the XLH Network, Inc. XLH Day and getting more involved with the XLH community.
NOTE: Thanks to member Marina Velazquez for drafting this explanation for getting started. 
