The information in this forum is provided as a public service and is for informational and educational purposes only.
The XLH Network, Inc. is incorporated in New York State as a not-for-profit corporation, qualifying for 501(c)(3) tax-exempt status as a public charity. It is not engaged in providing medical advice or professional services. Nothing herein should be used for diagnosing any health problem or disease, nor construed as the prescription of medication or treatment for XLH or any other medical condition. In particular, information on this website does not substitute for professional care. The information provided here is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing doctor. If you have XLH or suspect any problem with your health, consult your doctor or other health care provider.
All statements, case histories, stories, narratives, or discussions made within the pages of this forum regarding medical or dental symptoms, treatment, or the results thereof, should not be taken as indications of diagnosis, or proof of relief, cure, or even of general use to all. XLH has so many differences in symptom severity that each experience, although similar, should be taken as unique and not necessarily related to the experience of anyone else. All information is for educational purposes only and is not applicable to any individual patient or person. All statements should be checked thoroughly with the source and/or your own medical supporters and caregivers.
Unless otherwise stated, the information on these pages has not been written by medical professionals nor by individuals with any specialized medical or legal training. Every effort has been made to ensure the accuracy of the information provided on the website, but The XLH Network, Inc. can neither be held responsible for such information nor be held responsible for information on linked sites.
Statements by general members of the Network do not not necessarily represent the opinions of the XLH Network, Inc. Statements in posts made here by officers and board members of the XLH Network, Inc., reflect only the individual person's opinion unless the posting is specifically stated to be the position of the XLH Network, Inc.
Confidentiality of data relating to individual patients and visitors, including their identity, is respected. The XLH Network. Inc., subscribes to the HONcode principles of the Health On the Net Foundation, and we have an ethics committee to address any ethical issues the XLH Network, Inc. may confront.
